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Shop Contact Donate Shop Contact Donate Understanding NF Neurofibromatosis Intro to NF NF1 NF2 Schwannomatosis Genetics of NF Living with NF NF Registry NF Heroes CTF Biobank This is NF Photo Series Make NF Visible Photo Series Patient Engagement Program Get Support Newly Diagnosed Find a Doctor (US) Find a Doctor (Europe) NF Forum Symposia NF Camp CTF Library for Kids Contact Us Who We Are Our Mission Mission and Impact Our Core Values CTF Europe Our People Foundation Staff Board of Directors Business Advisory Council Medical Advisory Committee Clinical Care Advisory Board Financial Information Financial Responsibility Research Catalyze Discoveries Discovery Fund Young Investigator Award (YIA) Drug Discovery Initiative Registered Reports (DDIRR) Drug Discovery Initiative - DELopen Awards (DDI-DEL) Clinical Research Award (CRA) Contract Awards (CA) Opening the Data Drawers Accelerate Programs/Projects Synodos Genotype-Phenotype NF Volumetric Analysis Gene Therapy OPG Consortium Resources NF Registry NF OSI and Data Portal Clinical Drug Pipeline Biobank NF Market Model NF Research Tools Patient Engagement Clinical Care of NF (for Clinicians) Network NF Conference NF Forum NF Workshops NF Clinic Network (NFCN) REiNS Collaborations MEK Get Involved Make a Donation Make a Donation Support CTF at Work Fundraise Shine a Light NF Walk NF Endurance Special Events/DIY Classrooms that Care Youth Development Connect2Fight Volunteer Volunteer Raise Awareness Advocacy Partners Cupid's Undie Run Get Support NF Forum NF Camp Events Events Calendar of Events Find an Event NF Conference NF Forum Galas Special Events NF Awareness Month End NF with Ian Desmond News & Resources News News/Blog Newsletter Resources Resource Library Media Library Branding CTF Library for Kids Bringing Brigatinib to NF2 Patients: From Promising Potential to Platform Clinical Trial Learn more View our exclusive new photo series, Make NF Visible View now FDA Approves First Ever Drug for Neurofibromatosis! Learn more NF affects one in every 3,000 people, worldwide. Learn more Coronavirus (COVID-19) Updates Learn more Previous Next Our vision is to end NF The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community. Research for a cure Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure. Learn More Fundraising Programs NF WALK NF ENDURANCE CLASSROOMS THAT CARE SPECIAL EVENTS/DIY Upcoming Events Latest News Top Ten Advancements in NF Research 2019 Coronavirus (COVID-19) Update Children's Tumor Foundation - Coronavirus Update - April 30, 2020 2020 NF Conference Now Virtual June 15 - 16 Registration and Detailed Agenda to be announ... More Good News for NF Patients with Low Grade Glioma (LGG) Investments in LGG research to transform patient care: congratulations to Gilbert Family Foundation for sponsoring first-rate consensus workshop and gratitude to Synodos ... More New NF2 Accelerator-funded drug discovery research projects underway The NF2 Accelerator Initiative is dedicated to bringing active NF2 treatments to the clinic and to patients by expanding the clini... More Children’s Tumor Foundation Announces “Make NF Visible” Campaign for NF Awareness Month Focus is on elevating awareness and funding for rare genetic disorder that affects 2.5 million people worldwide and has no cu... More View All News Children's Tumor Foundation 370 Lexington Avenue, Suite 2100 New York, NY 10017 1-800-323-7938 info@ctf.org © Children's Tumor Foundation - All rights reserved Privacy Policy This website uses cookies to improve your experience. By continuing to use this website, you agree to cookies being used. To learn more, please view our Privacy Policy Continue...